AN inspirational nine-year old girl who was born with spina bifida and who is paralysed from the waist down has inspired the Kirriemuir Inner Wheel Club to donate vital money to the Scottish Spina Bifida Association (writes Janet Thomson).
Murran Mackay from Kirriemuir never complains and her smile would melt even the hardest of hearts. When the club heard her tale they decided to raise funds for the SSBA in her honour.
Club secretary Frances Martin said: “Every year we stage a Christmas carol service at the Old Parish Church in Kirriemuir with the local minister and primary school. The £350 raised at the service will help the SSBA support over 3000 children, young adults and families throughout Scotland whose lives have been seriously affected by spina bifida and hydrocephalus. Most of those born with spina bifida are paralysed from the waist down and will suffer lifelong urological problems. Additionally, 80% of those born with spina bifida also have the condition hydrocephalus. Both conditions cause lifelong complex disabilities.”
Loraine, Murran’s very proud mum, was touched at the invitation to meet the Kirriemuir Inner Wheel Club on Tuesday (yesterday) on behalf of the SSBA.
She said: “I have five children and Murran is one of twins. Her sister is perfectly okay, but sadly, Murran was born with spina bifida.
“She never complains and just gets on with life. Sometime she asks “why can’t I walk?” but she’s happy and independent and really she doesn’t know life any other way. The SSBA have been a life-line for us; always there with help and advice. I honestly don’t know how we would have coped without them. If you would like to become a Community Ambassador for the SSBA please call them at their head office on 01236 794508.”
The charity supports families as soon as a baby is diagnosed with the condition and continues to support the individual and their family for life. It has to raise £1 million annually as it receives less than 1% of its funding from the government, which means it has to raise nearly all the funds from public donations.
The charity would like to hear from those willing to become a Voluntary Community Ambassadors. All you do is place a countertop collection box in a local shop, look after the box; check on the collection and return the donated funds to the charity.